Keira Curtis: Recovery and Degree Success
Keira was one of the early members of MEDALS. Keira had been at the University
at Norwich for just six months when she was first diagnosed with ME. She
eventually had to come home from her course in the Easter of 1993. Keira won a
Social Security Tribunal to gain Income Support in 1993, and during her studies,
she has received Severe Disablement Allowance. She spent 2½ years away from
University. She took some Italian evening classes to keep her brain going; read
books and watched videos.
In 1995, she transferred from the University of East Anglia to the University of
York, which has a degree in Biochemistry with a modular structure so, with the
university's support, she was able to work at a reduced pace. As her health
improved, she was able to increase the workload, and she finally graduated in
the summer of 2000 with a First Class Honours Degree in Biochemistry. From
October 2000, Keira will be studying full time at the University of Cambridge
for a Ph.D. In Cambridge, she will receive a full grant as a postgraduate
student. It has taken a long time, and she still suffers from bouts of
tiredness, but she is mostly recovered and intends to hold down full-time
studies. We wish her every success for the future.
A success story in M.E. management.
My name is Liz McDonagh. I was a home economics tutor in my 50's at Rotherham
college. Life seemed to going fine until one day I became ill. I had a chest
infection, and consequentially I was given antibiotics by my doctor. But things
were not quite right. As first things seemed to settle down and I was improving
but then I found I had a new set of strange symptoms, violent stomach pains,
general aches and pains. Being a conscientious worker, and not being advised
otherwise, I soldiered on, ending up collapsing at work.
I was confused. I had problems with my fingers manipulating things. Cooking
tasks became a multistage problem. I had problems with walking and getting
about. Within three months I was diagnosed with Post Viral Fatigue Syndrome. I
eventually took early retirement from my job. I had fallen into the classic M.E.
trap of stress and overload.
Fortunately the indigestion problem could be treated successfully with
conventional antacids. My doctor prescribed 'Prozac', possibly thinking I had
depression. I took two then stopped because they made me worse. At that point I
looked for further medical advice. I came across a doctor in Manchester, who
suggested fasting for four days. So being at the point of scraping the bottom of
the treatment barrel I decided to try it. I had withdrawal symptoms at first, I
wouldn't recommend it, but it did prove that food in some way was contributing
to my illness. The paralysis and other problems disappeared like magic. So the
way forward was an elimination diet to identify what was causing the problems.
Porridge & cabbage were identified as culprits. On stopping these the
indigestion went as well.
During my illness I joined Action for M.E., the M.E. Association, and Action
against Allergy. I joined the local Don & Dearne M.E. group, eventually becoming
chair-person. I researched the subject myself looking for answers myself. At
that time there was much speculation about the cause on M.E. as there still is
today. It was known that in M.E. the immune system is somehow damaged in the
sense that is dysfunctional and does strange things. It had been known for many
years that people with compromised immune systems from other diseases suffered
from fungal overgrowth of a yeast called candida. I thought this could be one of
the mechanisms propagating my illness. So I tried a strict 'anti candida' diet
just as a experiment at first, but eventually for around 3-4 years. This meant
avoiding products containing yeast or sugar e.g. bread which by experiment I
know made me worse.
It worked! The confusion, 'brain fog' whose onset was last to arrive went away
first. Things became much better and more recently I've taken up Scottish
dancing and treated myself to a dog.